Dec 31, 2015
Advertising
Description
We support those families that have children that have been affected by the prenatal effects of anti-epileptic medication.We have identified that we do not have a clue as to how to advertise about us. We are a small group that falls under the criteria a rare disease organisation. The children affected have complex disabilities, whose mother (sometimes fathers too) are disabled, often these are single parent families as there are often family break downs due to stress. We have found that many aspects of this carries stigma (epileptic, bi-polar even migrainne and neuralgia, Worst of all by our existence we show that there are inherent dangers in some medicines We did use to be a charity that supports our children, but a recent review has made us alter this to support the family. We recognise that both the children and their mothers (sometimes fathers) are not only disabled, but also carers.
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Posted on May 07, 2015