The Scleroderma Society has been supporting people with scleroderma since 1982. In the past thirty years we have supported thousands of people through our helpline, our publications, our forums and through the research that we have helped to fund. We are now looking forward to the next 30 years. After 3 decades of being entirely volunteer run we have just employed our first member of staff. We have done this because we feel the Society can and must increase its activity considerably both in the funding of future research and also in the support of people impacted by scleroderma. We couldn’t do any of this without our members or supporters who continue to work tirelessly raising both funds and awareness. Scleroderma is a journey with many ups and downs. At the Scleroderma Society we are there for that journey.
Health
The Scleroderma Society provides information and support for people impacted on by the disease scleroderma. Scleroderma is a rare connective tissue disease. There are about 8,000 people in the UK with systemic sclerosis which can effect many part of the body. There are many more with the limited form. 75% of people with scleroderma are women.
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