Westport, Ct
Our intent is to create a website where we can aggregate all relevant data in one place regarding hemophilia and all bleeding disorders making it much more acccessible to the public. Create a robust platform where we can start an ombudsman program to assist in insurance issues, healthcare, hospital best practices and lobbying for the care of the community.
Health
We are parents of a severe hemophilia A child, our goal is to create a better way to share data and information about relevant issues regarding hemophilia from the 101 level to medical professionals.
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