Mission

Innovative viral campaign to raise research funds and awareness for ME/CFS

Category

Health

Additional Information

The campaign is modelled on the recent hugely successful ALS Ice-Bucket Challenge and the No-Makeup Selfie (NB: there are no buckets of cold water involved!) The challenge itself is fun, playful and unique and we believe will have excellent viral potential.  It's family friendly, so children, school or youth groups can also participate.   About ME/CFS ME/CFS is an neuro-immune condition characterised by profound and disabling fatigue and pain.  People with ME/CFS also experience symptoms in the brain, joints, muscles and gut as well as the immune, endocrine and autonomic nervous systems.  Although some have intermittent periods of good health between relapses, there is currently no cure and very few recover fully. Around 17 million people worldwide have ME/CFS - it's as disabling as Multiple Sclerosis and yet is 2-and-a-half time more common than MS, and despite this, receives only 1/6th the funding that male pattern baldness does!  Who are we? We’re 5 professional and energetic women each of whose life has been touched by ME / CFS. We range in age from early 30s to late 50s, and our professional backgrounds include Banking and Finance, IT (in particular online), Politics, Psychology, Marketing and Customer Service. Between us, we’ve worked in the corporate, community and public sectors as well as the military, and have lived on 5 continents, and share a passion to do something about ME / CFS.    What can I do?   We're inviting you to use your skills, contacts and expertise to help us raise awareness and much-needed funds for this disease.