Mission

Harrison's Fund has one goal. To get as much money as possible into the hands of the world's best researchers, who are working to find a cure for Duchenne. It sounds like a horrible disease. And it is. Which is why we want to eradicate it.

Category

Disability

Additional Information

Harrison's Fund was set up in 2011 up by Alex and Donna Smith, in response to their son Harrison being diagnosed with Duchenne, a type of muscular dystrophy. Its aim is to raise money to fund the world's best researchers, who are working to find a cure for the disease. Duchenne is a fatal neuromuscular condition caused by the lack of a protein called dystrophin which results in progressive muscle weakness. One in 3,500 boys is born with Duchenne muscular dystrophy in the United Kingdom each year. Their average lifespan is just 20 years and it is 100% fatal. Harrison’s Fund is different from many other Duchenne charities out there because it focuses on trying to find a cure for the disease rather than on palliative care.