Fop Friends

FOP Friends Profile Image

Helen Bedford-Gay

Trustee / Director Of Operations /Mum

Sale

http://www.fopfriends.com

Mission

We are the only UK charity dedicated to supporting those living with Fibrodysplasia Ossificans Progressiva (FOP). We also support those living with progressivie osseous heteroplasia, or POH. Our mission is to fund essential research, advocate for patient rights, and provide a supportive community for families affected by this rare genetic condition. At our heart, we aim to improve the lives of those living with FOP while supporting the race to find a treatment and a cure. Our strategy focuses on four key pillars: research, by funding the specialised team at the University of Oxford; support, through family conferences and peer networking; education, to reduce the high rate of misdiagnosis; and advocacy, to ensure patients receive appropriate medical care. Founded by the Bedford-Gay family following their son’s diagnosis, our charity serves as a vital bridge between the clinical world and the patient community. Ultimately, we work to ensure that no family faces the challenge of living with FOP or POH alone.

Category

Health

Additional Information

Helen is yet to share this information.

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Help Wanted Ads

Jun 30, 2026

Illustrator required for a children's story book

Description

We are looking for an illustrator to illustrate a children's book to explain FOP. It will be a short picture book, aimed at younger children age 6 ish. It is a gentle story about friendship, while introducing and explaining FOP to chidlren at an age appropriate level. One of the characters has FOP. The story explains FOP but focuses on play, resilience and the ways to shine together. The style we are looking for: Warm and Bright Character focused Sensitive representation - there will be subtle nods to the physical reality of FOP. However, the focus remains on the characther's ability and their vibrant and active approach to life.

Skills Required

  • Marketing
  • Graphic Design
  • Concept Development
  • Branding

Posted on Dec 17, 2025

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