The Cavernoma Society

Simona Stankovska



We support those affected (patients, carers, friends, and family) by a rare neurological condition called Cavernoma. A Cavernoma is a lesion in the brain or spine made up of abnormal blood vessels which bleed and can cause strokes, seizures, and other neurological deficits. The condition is not well understood in the medical world, so our aim is to build awareness and educate people. 1 in 600 of us has a Cavernoma, yet it’s still considered rare. We want to fun research into the condition in order to encourage earlier diagnosis and better treatment for the condition. we also provide practical and emotional support.



Additional Information

We only became a registered charity on July 15 2019, so we are still a new charity and need all of the help we can get.

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Help Wanted Ads

Oct 19, 2019

Building our website and membership database


We are a new charity which supports people with a rare neurological condition. Our website currently has basic info as it’s been built using a website building template. We need something more technical now, with a membership database, so we can not only collect member info that can be used for research, but also, so we can support members and build our database to show funders the support we can offer. We have written copy and can do more, we just need design and build help.

Skills Required

  • Web Development
  • Seo
  • Branding

Posted on Aug 19, 2019

Dec 01, 2019

Information video/animation to help members with a rare neurological condition


We are a new charity and want to create a help/info/support video for members diagnosed with a rare neurological condition called Cavernoma. It’s a lesion in the brain or spine which can cause strokes, seizures, disability and death. It affects people of all ages, including babies. When diagnosed, members are often scared and feel alone. Hospitals don’t have enough info about the condition and neurologists don’t either. If we can make a video that can be distributed in hospitals and to members, it’ll help thousands of people who are diagnosed every year.

Skills Required

  • Videography

Posted on Aug 19, 2019

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