Haemochromatosis Uk

Neil Mcclements

Ceo

Spalding

http://haemochromatosis.org.uk/

Mission

Early diagnosis saves lives. We work to support anyone affected by genetic haemochromatosis, the UK's most common undiagnosed inheritable genetic condition. Untreated, the condition can lead to irreparable organ damage, including cancer, heart disease, diabetes and severe joint pain. Yet, treatment is simple, effective and cheap. Help us, as we help others.

Category

Health

Additional Information

Genetic haemochromatosis is the UK’s most common genetic condition, directly affecting over 380,000 people. It is a hereditary (recessive autosomal) condition whereby a mutation in the HFE gene prevents the body from regulating iron correctly. Although it is commonplace, the condition is significantly under-diagnosed in the UK. The NHS is aware of just 14,000 people with genetic haemochromatosis. Untreated, the condition can lead to iron overload, where the body is unable to process excess iron. Excess iron is extremely toxic. Genetic haemochromatosis can cause liver disease, cancer, heart disease, chronic fatigue, diabetes, severe joint pain, sexual health issues and neurological issues.

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Help Wanted Ads

Dec 23, 2019

InDesign - layout of (award winning) best practice guidelines

Description

Over the past 2 years we've been working on a project to define and promote best practice nursing guidelines for venesection. This has involved co-creating new guidelines with over 200 nursing specialist from all over the UK. We have now got the guidelines ready for endorsement by the Royal College of Nurses, for publication nationally. The copy is ready, the ToC is complete, the glossary defined. But now we need someone to lay out the text in Adobe InDesign in A5 format so we can formally launch the guidelines in the New Year. We will provide : a. the guidelines in Word document format (approx 8000 words) b. any stock images required for cover or chapter covers/idents c. lots of encouragement, tea, biscuits and charity swag / tee shirts etc You'll need to be : a. familiar with InDesign b. able to rock & roll within our timescales c. be open to being recognised for your work at an awards ceremony later in 2020 This project can be done anywhere, but needs to be completed before Christmas 2019. We've already won two awards for this work (see https://www.patientsafetylearning.org/blog/guys-st-thomas-nhs-foundation-trust-neil-mc-clements-and-haemochromatosis-uk and https://www.patients-association.org.uk/news/big-ideas-for-better-health-awards) We hope to enter the finished artefact into the BMA patient information awards in 2020, too.

Skills Required

  • Graphic Design

Posted on Nov 26, 2019

Message

Jan 26, 2020

Illustrator - simple line illustrations for (award winning) nursing guidelines

Description

Are you handy with Illustrator? A deft hand at line art/drawings of people, arms, medical-y procedures? We need your help! Our award-winning nursing project has brought together patients and professionals to design best practice guidelines for venesection. (This is the posh name for blood donation.) We're seeking an illustrator to draw up to 7 line images in Illustrator (or similar tool) to illustrate the 7 steps in safely drawing blood from a person's arm. Something like an Ikea-assembly type illustration. Simple, eh? We'd love your help before mid January 2020 to pull this together. We will provide : a. some rough photos of the intended steps b. lots of encouragement, tea, biscuits and charity swag / tee shirts etc This project can be done anywhere, but needs to be completed before mid January 2020. If you are London or Peterborough based, so much the better for meeting to discuss. Or - if further afield - video conference etc. We've already won two awards for this work (see https://www.patientsafetylearning.org/blog/guys-st-thomas-nhs-foundation-trust-neil-mc-clements-and-haemochromatosis-uk and https://www.patients-association.org.uk/news/big-ideas-for-better-health-awards)

Skills Required

  • Graphic Design

Posted on Nov 26, 2019

Message

Mar 14, 2020

Impact statement with Adobe Spark

Description

We're looking to add some pizz-azz to our impact reporting in early 2020. No more dull brochures, waffly waflle and baffling statistics. We're looking for someone to collaborate with us in producing an impact statement in Adobe Spark (or similar), something we can use on social media, promote on the web and demo to people on big screens at conferences. Can you help us? We're looking to get started in early January and have it all wrapped up by early March. Get in touch!

Skills Required

  • Web Development
  • Marketing
  • Advertising
  • Graphic Design
  • Social Media Marketing
  • Pr

Posted on Nov 26, 2019

Message

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