Mission

At DEBRA UK, we stand with everyone living with epidermolysis bullosa (EB) — also known as butterfly skin — a group of rare, devastating and incredibly painful genetic skin conditions that cause skin to blister and tear at the slightest touch. Today, there are limited treatments and no cures. But DEBRA UK is changing that. We provide vital care and support that improves quality of life now, while investing in pioneering EB research to unlock effective drug treatments for the future — treatments that could transform lives by accelerating wound healing and reducing the relentless pain and itch of EB. We receive no statutory funding. Everything we do is powered by fundraising, our charity shops and the generosity of people who believe in a better future for everyone affected by EB. With your help, we can amplify our voice, reach more people and move closer to our vision: a world where no one must suffer the pain of EB.

Category

Health

Additional Information

We urgently need media partners who can help us reach more people, inspire new audiences and build the support needed to accelerate our drug repurposing journey. Free advertising or media exposure could make a real difference — helping us move faster towards effective treatments that can transform quality of life for people living with the relentless daily pain of EB.